I was fortunate to lead a team of child and adolescent psychiatrists in all stages of their careers. I have asked two of them to share their experiences so that others can have an idea of what the experience is like. The members I spoke with are Nanelle Jones-Sullivan, MD, from Vacaville, and John Stewart, MD, PhD, from Los Angeles. Nanelle is a “retired” child and adolescent psychiatrist who works as a court-appointed special advocate (CASA) worker, as well as with several other nonprofits that focus on community service. She’s also studying to become a horticultural therapist. John is an early-career child and adolescent psychiatrist who was finishing his fellowship at USC when he participated. He is now building a private practice in Los Angeles (Steward of Mental Wealth) and also works at Amae Health, a partial hospital program. I interviewed them separately and edited their answers slightly, with their permission. The following is a summary of my conversations with them.
Robert: What were your goals, or what led you to attend Spring Advocacy Day in Sacramento?
John: My main objective was to learn the process and, beyond that, to see whether it was appropriate to raise my own agenda. By the end of the day, I realized I didn’t want to sideline the CALACAP team’s highly intentional efforts. I wanted to see if the current methods of influencing legislation were a good fit for me.
Nanelle: I wanted to learn more about politics, especially local politics, and bills that impact how I practice medicine. I want to have an impact and understand what’s going on at a higher level. There’s a parable of The River where people are rescuing people from the river, and they’re so busy jumping in to rescue that they never investigate who is upstream throwing people into the river. Healthcare can be like that. I also thought about my own health and how legislation affects me personally. Also, living in Vacaville allows me to see how personal politics can be. You know your elected officials, and you see them in the community. I think that inspired me.
Robert: Did you feel adequately prepared by CALACAP?
John: I’m the type of person whose eyes glaze over when I encounter legalese, but the prep work our lobbyist did, both in printed materials and in training, made it feel accessible. Also, because I wasn’t the main person in my group leading the effort, this removed pressure and allowed me to adapt and join the other members of the team once I felt ready.
Nanelle: No, but I was prepared better than really needed. I think of it like skiing. At the top of the hill, it feels terrifying, but by the third or fourth run, it feels enjoyable. However, the next year I feel just as anxious at the beginning. I always feel like I’m not prepared, but it turns out I’m better prepared than I need to be. In addition, there’s always someone else there you can rely on. You don’t have to be in charge.
Robert: What was it like to share your story and experience as related to the bills and policies we supported?
John: I felt both nervous and intimidated at the beginning of the day, and as the day progressed, I became more confident in playing an active role. I started looking around the room while in the legislative offices and gathering information on how to connect with that person. I was eventually able to share personal experiences, including witnessing the state of the mental health care system through the lens of my brother’s struggle with severe mental illness, my own dependency on expensive biologics and need to have 40+ cm of my small intestine removed, and my deep love for nature in all corners of California. This helped me to connect to the offices beyond my degrees and profession. Access to health insurance is important to me and has shaped my personal life and career path so that I can maintain access to my incredibly expensive medication. “I’ve had to rely on other doctors to fight for me to retain access to my biologic treatment.” This made the issue of prior authorizations both a professional and personal priority.
Nanelle: Since retiring, I’ve been facing a chronic health problem. I felt ambivalent about sharing my personal health story because my training and practice as a psychiatrist advised against sharing personal stories. I felt more comfortable sharing my professional and community experience but found it interesting to see how my individual experience matters to others. I think doctors should know that.
Robert: Sharing both personal and professional experience is very important in advocacy. It’s interesting how people can think we are just doctors, rather than people with our own personal and family struggles. We don’t share those struggles with our patients, but it’s powerful when we share them with policymakers.
Robert: Were you anxious, and did that change throughout the day?
John: I’d had past experiences with other advocacy groups that were less than ideal, so I went in nervous but encountered many people who were not only skilled but also eager to build my skills and confidence. “As the day progressed, I realized the same skills that make it easy to connect to patients also apply in advocacy.”
Nanelle: Yes. I addressed that a little before when I said it’s like skiing. At the beginning of the day, you’re anxious, but after a few runs, you feel good. I started very anxious, but by the end of the day, I was excited and enthusiastic.
Robert: What would you want psychiatrists to know about the experience?
John: Incremental and sustainable change is just as important in government advocacy as it is in the clinic. The same skills that make us excellent child psychiatrists also apply to advocacy and to working in concert with others toward a common goal, regardless of our political affiliation. I’d also like to make clear how easy it is to show up. You can fly into Sacramento and back home on the same day, and the preparation provided by CALACAP is transformative. You meet like-minded people, and it’s not intimidating—it’s invigorating. The people I serve in my career are a big part of the reason I get up every morning, and that drive applies to advocacy in all forms.
Nanelle: I want other psychiatrists to know it’s possible to make changes upstream. With a busy practice, it can feel hopeless trying to help everyone. Knowing that we can make changes before things become overwhelming is very helpful. I also found it surprising that people wanted to know what doctors think. In our practice, we get feedback that implies we’re overly influenced by money or other factors, so it’s rewarding to hear people wanting to know what we honestly think.
I’m really glad I got to share the experience with both Nanelle and John. I feel inspired and invigorated when I’m advocating and meeting other child and adolescent psychiatry advocates. It can be easy to feel stuck in a system that doesn’t work, caught up in rescuing others from a river. It’s good to know that it’s possible to go upstream and prevent problems rather than just responding to them later. I hope others will come to Spring Advocacy Day and other advocacy events, both to keep themselves motivated and to build a better healthcare system for all. |